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Queen Mary University of London

Partnership with Queen Mary University of London

As of March 2019, the Yale University Open Data Access (YODA) Project is enabling scientists across the world to gain access to the clinical trial data supporting the graded exercise therapy guided self-help trial (GETSET), which compares the efficacy and safety of guided graded exercise self-help (GES) added to specialist medical care (SMC) with SMC alone for patients with chronic fatigue syndrome (results from GETSET were published in Lancet in June 2017). This partnership establishes an independent process that promotes open science and has a goal of leveraging prior research investments to produce new knowledge.

The YODA Project performs independent scientific reviews of investigator requests for the participant-level data underlying the GETSET trial. QMUL has conferred on the YODA Project the authority to make decisions about the release of this clinical trial data. This allows all requests for the clinical data to be fairly judged and decided upon by an independent academic partner.