Details of Data Requests to Use Johnson and Johnson Data

Request listing updated daily

All Requests

The YODA Project posts proposals once data access has been granted or denied.

Approved Requests

The YODA Project posts approved proposals once data access has been granted.

Withdrawn Requests

The following data requests could not be fulfilled due to patient privacy concerns, data element availability, data security concerns, or lack of research proposal clarity. The YODA Project posts withdrawn/unapproved proposals at the time the decision is made.

Filters list

YODA Protocol Number 2021-4741
Product(s) of Interest ZAVESCA® (Miglustat)
No. Trials Provided 1
Ongoing

Intrathecal Adrabetadex for Niemann-Pick Type C (NPC): Case Control Study in Early Onset NPC and Comparison of Natural History and Treated Cohorts

Principal Investigator

Elizabeth Berry-Kravis Rush University Medical Center
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