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Community Data Sharing Resources

Initiatives for sharing and using data from clinical trials and other scientific research are yielding increasing data sharing resources that are available to the scientific community. The YODA Project encourages exploration of additional data sharing resources, including:

  • ClinicalStudyDataRequest.com : A consortium of clinical study data providers that facilitates access to patient-level data from clinical studies. Participating study sponsors include: Astellas, Bayer, Boehringer Ingelheim, Daiichi Sankyo, Eisai, GSK, Lilly, Novartis, Roche, Sanofi, Takeda, UCB and ViiV Healthcare.
  • Dryad Digital Repository : A curated resource that makes the data underlying scientific publications discoverable, freely reusable, and citable. Dryad provides a general-purpose home for a wide diversity of datatypes.
  • Figshare : A repository where users can make all of their research outputs available in a citable, shareable and discoverable manner.
  • NIH Data Sharing Repositories : A listing of NIH-supported data repositories that make data accessible for reuse (e.g. BioLINCC, ClinicalTrials.gov, dbGaP, NIDDK, GenBank, etc.).
  • Pfizer Trial Data and Results : A data sharing resource of Pfizer’s clinical trials.
  • Project Data Sphere : A free digital library-laboratory that provides one place where the research community can broadly share, integrate and analyze historical, patient-level data from academic and industry phase III cancer clinical trials.
  • SHARE Sources : A partnership between the Association of Research Libraries and the Center for Open Science to develop free, open data by gathering, cleaning, linking, and enhancing metadata that describes research activities and outputs.
  • Supporting Open Access for Researchers (SOAR) : A collaboration among members of the Duke Clinical Research Institute, academia, and private industry to open clinical research data for the benefit of the broader research community.
  • Vivli : An independent general access electronic data repository and search engine through which individual participant-level data and metadata from clinical trials conducted by researchers in academic, industry, foundation, and non-profit entities can be identified, hosted, shared and analyzed.

Are you aware of data sharing resources not listed above? Let us know: yodap@yale.edu

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